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Dianna's Health - April 2024 (Patreon)

Published:
2024-04-03 17:30:15
Imported:
2026-06

Content

(Levi typing) Hey everyone, Kyle just posted on Facebook, and I'll link it below.

I don't have a whole lot else to say outside of what Kyle posted. It's still difficult weekly to be honest. But in the recent 2 months I've been able to see Dianna more. A few waves a week, a couple of sentence exchanges back and forth, and the occasional laugh. A few things she's been able to add in her diet have helped the foods taste a little better than bland, so she's been at least enjoying those more. I guess all I'm feeling is that it's been nice to see her again giving a small smile. It's way more than I got 4-6 months ago when she wasn't able to see anyone else at all, and her diet was at a MINIMUM of what she could take.

We'll keep making her foods, taking the occasional photo, and updating you guys as much as we can while they try to get her better. Maybe she'll feel up for more QnA's in a little.

Thank you everyone for the support.

LINK - https://www.facebook.com/thephysicsgirl/posts/pfbid02jCqhWMzZjbv9v3jQsCNkPBNUaM4efpp1jrXWd5397ehLxFWcP6F1YSBUyVtgxp6Nl

Comments

Violet St Clair

Could Dianna have ME? Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a long-term, complex illness characterized by profound fatigue that is not significantly improved by rest and may be worsened by physical or mental activity. Its causes are not fully understood, and there is no single test to diagnose ME/CFS. Symptoms can vary widely from person to person and may include: -Severe fatigue that is not alleviated by rest -Post-exertional malaise (PEM), where symptoms worsen after physical or mental exertion -Unrefreshing sleep -Cognitive impairments, often described as "brain fog," which include difficulties with concentration, memory, and processing information -Pain, which can be widespread or located in specific areas such as joints without swelling or redness, muscles, and headaches -Sore throat, swollen lymph nodes, and other flu-like symptoms -Sensitivities to foods, chemicals, odors, or sounds -Orthostatic intolerance (OI), which is a condition where the body's ability to regulate blood pressure and heart rate is impaired, leading to dizziness, lightheadedness, or fainting upon standing or sitting up The exact cause of ME/CFS remains unknown, though it may involve a combination of factors including viral infections, immune system abnormalities, hormonal imbalances, and genetic predisposition. Managing symptoms often requires a multifaceted approach, tailored to the individual's specific symptoms, and may include medication for pain and sleep disturbances, pacing activities to manage energy, and various forms of therapy to cope with the impact of the illness. Research into ME/CFS is ongoing, with efforts to better understand its pathophysiology, develop diagnostic criteria, and find effective treatments.

Jean-Philippe Suter

Time-sensitive: happens on April 11 Hi Levi or Kyle, I wanted to share an upcoming free informational seminar on neuroinflammation, in case one of you would like to participate to possibly learn something that could help Dianna: << In the realm of brain health, staying informed and ahead is not just an option; it's a necessity. With that in mind, we offer you one final invitation to join Amen Clinic's exclusive webinar on Neuroinflammatory treatment, led by the renowned Dr. Ebony Cornish, MD. https://www.eventbrite.com/e/amen-clinics-neuroinflammatory-intensive-treatment-program-webinar-tickets-852483419857?aff=oddtdtcreator&utm_source=Klaviyo&utm_medium=email&_kx=WnxTorY8iA9UTMZUdghsezVxyWuZeeeicH0n356HagE.WiZ6mG >> Take care, Jean-Philippe

Wouter Weggelaar

Would anyone be so kind to cross post the Facebook post, as I'm not using Facebook and can't see it. I don't want to load Levi or Kyle with extra work!

Sören Schwert
>>134697602

Update from Kyle: More of the same over here: boredom, suffering, and finding what joy we can. Nothing much has changed, we’re slowly making our way through treatments and hoping for the best each time. I want to try and post a bit more, keep you informed of what’s happening with Dianna. This really feels like an invisible disease- it consumes our lives but there’s very few tests to indicate anything is wrong, and treatment efficacy is random. But we want to do our part to keep this as visible as possible, show the reality of #longcovid and #mecfs Bring more urgency to finding a cure. Thanks everyone for all your support and kind words, they mean so much to us.

Sarah Allen

So, so pleased to hear things sound a little better than in the back half of 2023. I’ll keep everything crossed it continues. I have post-infectious fatigue which has triggered MCAS following a different illness (not Covid), and I just wanted to say how much I sympathise with the neuropsychiatric symptoms MCAS brings. I saw on a previous update you get depressive episodes. I get extreme anxiety, agitation, and relentless suicidal thoughts during these spells. Following a strong dose of antihistamines, I’m back to completely mentally healthy and stable. It’s utterly terrifying - I become a different person, one whose mind is hellbent on killing them. I’ve always been more scared of illnesses that affect the mind (e.g. dementia) than physical illness or injury, and that’s even more true now I’m experiencing what they can do. And of course, you try to explain this symptom to most doctors and they then chalk the entire illness up to a mental health issue. *sigh* Since when did an antihistamine resolve severe anxiety and suicidal ideation?

Jonathan

Kapalbhati ( Sanskrit: कपालभाति) . You can do it very slowly - without getting up... push the exhale from deep abdomen... simply release and permit inhale to come in on its own.

Floyd Titus

Sending prayers still! Thank God for the completion of the MRI without a crash! Love you guys. I really miss her wonderful video, nevertheless she is still a wonderful, beautiful, valuable person! Hugs and to you for your love and care for her!

Harry Stoner

We love you Dianna and we're really digging the new short hair look !!!! This will be a lot more comfortable for you going forward and was a really smart move :)

Harry Stoner

We love you Dianna and we love the new short hair style !!!! This will be a lot more comfortable for you going forward :) :)