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I had a month where my downward spiral halted, all my treatments were finally in sync, and I could have used that moment to start a recovery... but the next month I had two vital meds ripped from me and immediately collapsed again. (Surprise!) Even with one of them (partially) back now, the timing landed me in the 4-week stretch of Botox fading I hit every 3 months, when I’m fairly useless even if everything is going right.

It’s the migraines that have rendered me so useless that even gathering energy to post a non-tweet update is nearly impossible. I’ve been given a new migraine med - cheaper than the one that definitely worked and gave me the month of hope, because penny pinching evil - and I won’t know if it worked until mid-June at earliest. The same time frame is in place for Botox, as a certain pandemic delayed my appointment - which wrecked what would’ve been a useful med plan AND wrecked my keeps-me-alive-when-all-other-plans-fail physical therapy schedule!

All I can do is try not to injure myself more right now, while I’m brittle and vulnerable, and wait out this very unnecessary and avoidable re-spiraling.

This is the best sketch I’ve done in WEEKS, and… yeah. Sorry.

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Charles Barnard

Do what you need to do. And yeah, the HAVING to create combined with the inability sucks big time!