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Hearing Loss (A True Story) is now public (Patreon)

Published:
2022-02-05 16:03:48
Imported:
2026-09
Tags:

Content

Hey there!

Just wanted to let you know that this video is now available to watch with your eyes on YouTube. Literally hit "PUBLISH" 30 seconds ago. Here's the final link:

https://youtu.be/yD1W1geyaLY

We read ALL of your title suggestions, but ultimately looked to google trends for the final answer and "Hearing Loss (A True Story)" is what we ended up with. 🤷‍♂️ It's pretty on the nose, I'd say.

As always, thank you for everything, you are all in my twinkie clogged heart for ever and ever.

-G

Files

Hearing Loss (A True Story)

SUBSCRIBE: https://gphr3y.me/sbscrbe PATREON: https://gphr3y.me/ptrn HEY YA'LL. My wife, Kathy, suffers from what is known as "Cookie Bite" hearing loss and Diplacusus Disharmonica. This is the story of her hearing loss journey, we hope it helps a few of you along your journey, too. CHAPTERS: 00:00 HELLO! 00:44 Kathy's Introduction 01:36 Hearing Loss Simulation 02:33 A few Statistics 03:02 How we discovered Kathy's hearing loss 05:13 What caused her hearing loss 06:16 Diplacusus Disharmonica Simulation 07:29 Kathy attempts to understand normal speech 08:39 Kathy's first hearing aid experience 10:15 Our Audiologist Experience 10:59 Unexpected drawbacks 13:41 Unexpected Benefits 😃 15:20 Closing Thoughts MORE INFORMATION AND SOME WAYS YOU CAN SUPPORT: Hearing Health Foundation - https://www.hearingloss.org/about-hlaa/ Hearing Loss Association Of America - https://hearinghealthfoundation.org/ Global Foundation for Children With Hearing Loss - https://childrenwithhearingloss.org/donate/ Hearing Aid Project - https://hearingaiddonations.org/ American Society For Deaf Children - https://deafchildren.org/ Hearing Facility shown in this video: Hearing Solutions Altamonte Springs, FL - https://hearingsolutionsfl.com/ Audiologist - Scott McWilliams 😃 PATREON: https://www.patreon.com/geoffcastellucci 🍎 Listen on https://apple.co/38YdpSb 🎧 Listen on https://spoti.fi/2VpMvOr 👕 MERCH: https://www.geoffcastellucci.com/store 👇 Be old and boring with me here👇 https://www.geoffcastellucci.com/ https://www.patreon.com/geoffcastellucci https://www.instagram.com/geophr3y/ https://www.tiktok.com/@geophr3y https://www.facebook.com/geophr3y https://twitter.com/geophr3y https://www.thevoiceplay.com/ https://spoti.fi/2VpMvOr https://apple.co/38YdpSb RELEVANT HASHTAGS #hearingloss #tinnitus #cookiebite #GeoffCastellucci Before I ever had a youtube channel of my own, I had wanted Kathy (my wife) to tell the story of her hearing loss and there didn't seem to be an outlet for it at that moment in time. Well, we finally made it, and I think we managed to make something different, and personal, and tragic, and hopeful, and I don't have the adequate vocabulary to really label what this video is, but I hope you enjoy watching and learning a little bit more about us and that this video might help a few of you out there, too. Thank you for watching and I’ll see you soon. MUSIC FEATURED IN THIS VIDEO Don't wanna Be - Kwon Pluck and Play - Kwon Press Fuse - French Fuse Kazoom - Quincas Moreira House of the Rising Sun - Geoff Castellucci Dynamite - Patrick Patrickios Silence For A Film - Ann Annie Theme For A One Handed Piano Concerto - Sir Cubworth Doh De Oh by Kevin MacLeod is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Source: http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1100255 Artist: http://incompetech.com/

Comments

Cécile Roussey

In fact, in your video you talked about the solutions that you are struggling to find in case there is an emergency whether it’s in the middle of the night or whatever, so that Kathy, your wife, is notified because it’s important to me that I know what it’s like to have an invisible disability, being a very severe victim, which can affect my daily life. I searched the Internet and found something that could make your life easier. I found this: For the day: Visual notification systems: Installing visual notification systems, such as flashing lights or light alarms, could help Kathy be alerted even if she cannot hear Phone calls or messages: If Kathy has a phone with visual or vibrating notifications, she may be notified when someone arrives For the night: Bed and pillow vibrators: These devices can be connected to alarms or phones to vibrate in an emergency, ensuring that Kathy wakes up or is alerted. Vibrating Alarm Clocks: These devices can be placed under the pillow or mattress and are connected to an alarm or audible alert. They vibrate strongly to wake the person in case of emergency. Night hearing aids: There are also models designed to be worn at night. Some can be connected to alert systems to provide amplified vibration or sound in case of emergency. These solutions can provide additional peace of mind, ensuring that Kathy is alerted even in low light conditions.

Eileen Parkman

Thank you again for this video. I believe it will help a lot of people. ♥️♥️♥️

Maegodorel

I really like the title !

Rebecca Hendricks

It was your decision in the end and I'm glad you and Cathy both are happy with it. Congratulations!

Hugmany Foemen

Always keep the Algorithm happy. The important thing is to get the message out.

Tine

I think that is probably the best title you could have gone with, Geoff. Thank you!😊

Gretchen G

Going to be sharing this with folks. Good title! Clear and to the point.

Amanda W

💜 So proud of you two.

Angie Woollard

Once again, I’ll just simply say: thank you. xo

Amy Cottrell

You did Not write all that in 30 seconds, But maybe that first paragraph..so.. Also...thanks for spilling #TheTea It's Twinkies...that's the answer.. Why you're immotalizing Why you're indestructible Why your Voice keeps getting pulled lower and lower #FreakingTwinkies Also Big 💞 to Kathy and To Really All of You Who Share In and Support Her Very Personal and Emotional Tale. It's an Independent, often Lonely, Frightful, & Almost Incomprehensable Journey for us all. We all Have Our Story 💟💓💔💕💞 The One Constant We (ALL) share, yet is Entirely Unique to OnesSelf #DiversityIsDiverse #AllForOne & #OneForAll I feel I should had also, #WeDoWhatWeMustBecauseWeCan Peace, Love, and Awesome Sauce 🎶talk soon🎶 Having #TheVillage Helps🥰

Amy Cottrell

Ok..time to Actually Watch The Thing You did the Work Thing.. I'll do the Watchey*Listening Thing All the Things

Suzy Bailey

For such an important issue a clear and simple title is definitely best. Geoff and Kathy, thanks again for the video! 👍💜

Tracy Z

Oh good. I get to share now with other channels. I wish you many views and much sharing. ❤️👍

Rachael Heidi

Thank you again for making this video. Really appreciate it ❤️.

Lydia Shea

The level of humor in this is perfect; it doesn't make light of the reality of the situation, but it makes the subject... approachable and eases any intrusive feeling that the audience might have with having Kathy's personal experiences discussed. Very well done. Thank you for sharing!

Hunter

If you can’t hurt a Twinkie, I guess you can’t work it off either…🤷🏻

Kim Jones

bless you Kath for putting us in the loop on this revelatory conversation. "Protect your hearing" us an underpromoted message. There's a time in your mid-late teens when you go to a concert for the first time "on purpose" in order to finally have that experience of the sensory intensity of a concert full-on. So you do that & then have no idea what is the meaning of the deafness or muting or ringing in your ears afterwards. -Then- someone is kind enough to tell you "oh that means you damaged your ears." ??? and that's all it takes to get it started. For me, it was Billy Joel at the height of his powers in the mid-'80s; and I can still say I wouldn't have given it up, even though I now have permanent tinnitus that is intensely annoying. I will never have silence again, that's for sure, and you can't miss that until you can never have it again. so I would say, at least -bring- earplugs with you to a concert in order to have the option. I know thus is not your (Kathy's) particular problem, but thank you for speaking up about it!

Emily Houk

Thank you so much for sharing this!!!

Amanda Hovendon

Love the title. Love this video. Now I get to share it with my friends and family. Thank you 😁

Brontesaurus Rex

I ran this by my students today as something of a test, and they were very entertained and interested so I think this is going in my roster of teaching aids. My school is making an effort to talk more about equity with our kids, and I'm saving this for when we teach around disability awareness in October. For today with this class it was a great concrete example for them of what I even mean when I say "privilege"--our world is designed for people who can hear and doesn't really consider people with challenges around that. They also just loved hearing Kathy's story. This video is amazing, thank you.

Darryl Weatherly

I love your music and your voice. I so appreciate your openness and being so personal by showing your fans that you are a real, down to earth person and going through life struggles like the rest of us. It is an honor to support you. Darryl

Constance Christensen

Thank you again for this video. I finally went in and had my hearing tested for the first time since having the stapedectomy. I have lost hearing in that ear and will be fitted for a hearing aid soon. What should I know about hearing aids,hmmm.

Kevin Hughes

Thank you for sharing your experience. I also have similar experience with my hearing. I was learning to read lips so I could have a chance of participating in conversations and work meetings. I misunderstood what people were saying so much that it became almost a funny meme-type situation where I'd say back what I heard and watch the reactions - usually shock. But, that wasn't something that would be ok at work. After Covid hit and we all started masking up and working from home, lip-reading was no longer an option. My hearing became something I just had to figure out how to deal with. I was lucky enough to find a good audiologist by way of my family doctor. She ran me through tests I am sure you are familiar with. My hearing loss just happens to be in the specific frequencies that most people speak in. I am good with extremely high and extremely low pitches (good thing I am a baritone/bass - nothing like you Geoff). But, that meant that most voices and most everyday sounds were not in my hearing range. And if there was any background noise...at all...I would have no ability to figure out voices...or even know someone was speaking if I was not facing them. Alarm clocks? I had the world's loudest alarm clock (as it was advertised at 109 db) that also has a pillow vibrator...and if the pitch wheel got turned too far I wouldn't hear it...but everyone else in the house would. I also have tinnitus which sounds to me like a constant high-pitched tone...I think it matches a C9 (an octave above the highest note on a piano). The cause of all this? Likely my time in the Army back in the 80's...and lots of rock concerts, and no regard for protecting my hearing when I was younger. Yes, it will continue to get worse as I get older. I now wear two hearing aids that are bluetooth enabled - which changed my life! Thanks to my "bionic ears" (as my wife calls them) I hear things that I had forgotten...footsteps, leaves crackling, ice falling into a cup, female vocal music, laughter, whispered intimacies (yelling I love you just isn't the same), full harmonies (I used to sing barbershop so I LOVE harmonies), and so much more. My bionic ears allow me to program "profiles" through my phone so I can change the tinnitus management (white noise at an extremely low db to cancel the tinnitus "whine"), focus the microphone pickups to omni- or uni-directional - if I want to focus on speech, variable noise filters (to block out restaurant roar or crowd roar), or enhance the pickup for outdoors activities. I love how they also play my phone audio directly, so I can hear music, phone calls, or other things on my phone very clearly. There is also an accessory microphone which is specifically for setting on a table in a conference room and is omni-directional to pick up all the voices and send them directly to my ears. Note - it can also be set to uni-directional and extends the range of pickup 10x normal should I want to hear something in another state. And another accessory plugs directly into our TV, so the audio is also broadcast directly to my ears while the regular volume is at a 'normal' level for everyone else in the room. I can't stress enough how important protecting your hearing is while you are young (and also throughout your entire life). I didn't. So, now I have to worry about making sure I "put my ears in" every day. I have to keep them charged up (they are rechargeable batteries, thankfully) every day. If I travel, the recharging station, domes, wax protectors, and carrying case are just more things I chance leaving behind if I don't make a list. And I've accidentally worn them in the shower once. Fortunately the unusual noise of the water hitting them made me remember I had not taken them out and they weren't damaged. But, I also have to wear a hat with a brim if I'm going out in the rain (I love fedoras anyway). Thank you again for opening up this part of your life.

Stephanie Skelton

My mom has degenerative hearing loss and I shared this video with her. She cried. She said this was the first time she’d seen her story and experiences explained so clearly. Thank you for helping my mom to feel seen - and for opening my eyes to have a better understanding of what she goes through. She’s never been able to fully explain to us what it’s like and this gave her the voice she’s never been able to find. Thank you. I found Voiceplay and Geoff’s solo work only a few weeks ago and I’m so grateful. (Also, I’m a teacher and my grade 5 students ask to hear your songs daily!! Many have downloaded Sixteen Tons and ask for more!) Thank you so much for sharing your story, Kathy and Geoff. I’m grateful for you.