Health Updates: I always forget how much sallad SUCKS (Patreon)

Don't mind me; the title is my cheeky way of saying, as many of you know already, I've started having seizures again 🫠

The timing makes sense, so it's not like anything has actually gotten worse, just the Botox is wearing off. My next appointment is (tentatively, pending a conversation with my neurologist) June 11th, so thankfully that's soon 😅

I know I say this every time, but I always forget how much more debilitating my health issues are when I'm having seizures again 🙈 I started having them 4.5 years ago, but every time I go a month or two without one, I get so spoiled and so blissfully ignorant of how my life was before.

Because ultimately, I'm always in pain. And I'm always exhausted. And sure, I'm not having seizures, but I'm still debilitated a lot. I still have bed gremlin days. I still have migraines that make me wish a lobotomy was a viable option. I still have days I consider how badly I really want to keep all my limbs. I'm still exhausted from being in pain all the time.

But then I start having seizures and it's like all this time in between was so easy and how did I ever survive while I was having seizures every few days??

You know when you get sick and your sinuses are congested, and you realize you really took for granted, you know, breathing? 😅 It's like that. Except I really took for granted all the days I was only in pain and not also seizing...

Anyway, I'm tired 😅 And I'm finding it hard to have patience with myself. But also very much wondering how I managed before the Botox 😳 It's a weird balance of emotions... But like... Man is it ever frustrating waking up with basically no energy despite having spent multiple days resting and "recovering" 🙄

Fingers crossed my neurologist either says I can go back to the Botox if something else doesn't work, or if I can't, that whatever we try next somehow works even better 🤞