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Real talk rambles: emotional toll of chronic illness and medical neglect (Patreon)

Published:
2019-05-04 01:33:28
Imported:
2026-06
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Content

I wasn't expecting this to happen but, needless to say it's been a rough day.
Thank you for helping me get to a place where I can share something like this, as awful as it is, in hopes it'll help someone else 🖤

Sigh, it's long (40 minutes), and I'm pretty much crying through most of it so it's gonna be hard to watch, but I urge you to sit with that discomfort and ask yourself why it's there or why we run from it so quickly.

It's a private moment yes, but I'm choosing to share it with you, there's no embarrassment or shame, just sharing pain and stories and hopefully growing

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Real talk rambles: emotional toll of chronic illness and medical neglect

TW: crying I had zero plan for this I just... I guess I needed an outlet. Thank you to everyone who gave me the strength to share this. It feels awful, but I'm doing it in hopes if there's anyone else going through anything similar, they can see this and at least know they're not going through it alone bcs sometimes when you're so isolated just knowing that can make a huge difference

Comments

Anonymous

This sounds a lot like my life. I wish we lived close and I could be your friend and grow you medicine and give you hugs when you feel terrible. I'm having a day like this today. 😢

Elrondpegg

Half way through the video ( my internet signal weak) I can relate being fibromyalgic myself The last few weeks walking/standing is difficult and my left calf is two inches bigger than other( swelling ) but remember Life's brutal (existence is suffering - The Budda), as Sylvester Stallone said in RockyBalboa" life ain't about how hard you hit , it's about how hard you can get hit and keep moving forward " don't let it get you down , keeping stress to a minimum I find is key , stay as upbeat as possible - search for a Fibromyalgia group near you - see if they can share tips - try adjusting your diet and keep tabs. Take it easy❤️ , seriously give Guiafenesin protocol a go - what have u to lose ?