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Discussion thread: Multiple Sclerosis episode is published (Patreon)

Published:
2025-09-04 02:15:13
Edited:
2025-09-04 08:04:08
Imported:
2026-06

Content

*This episode is published and ready to hear wherever you get podcasts.**

It’s an Ology dear to my family’s heart: Neuropathoimmunology (MULTIPLE SCLEROSIS) with one of the greats, Dr. Aaron Boster. Your grammapod, #FancyNancy (my mom) was diagnosed over two decades ago so I have really wanted to cover this.

We talked all about the causes or MS, the neurobiology, the early symptoms, treatments, the interventions that can slow down progression, new therapies that are on the horizon, the oftentimes agonizing journey to a diagnosis, and advice for those who've had MS for a while — or are newly in the community. Also yeah: weed.

https://www.alieward.com/ologies/neuropathoimmunology

Have you listened? Or do you or someone you know have MS? What else would you want people to know?

In neurons we trust (but can our immune systems LAY OFF them a little?),

Alie Von Podcast

Files

Neuropathoimmunology (MULTIPLE SCLEROSIS) with Dr. Aaron Boster - alie ward

Neurons. Immune systems. MRIs. Weed gummies? One of the greats in neurology, Dr. Aaron Boster, takes time to chat all about Multiple Sclerosis, a neurological autoimmune disease close to our hearts. Alie's mom, your grammapod a.k.a. Fancy Nancy, was diagnosed with MS over two decades ago, and this e

Comments

Amanda Nugent

I was diagnosed 15 years ago. I have been lucky- my burden of disease is listed as mild. I credit being put on Tysabri early for 5 years with keeping my MS in control. But there is an elevated risk of PML with Tysabri and I am now on Ocrevus. I wish I could have asked Dr. Boster about why PML is often associated with MS therapies and why do the very best therapies have higher risk of PML.

grass

why do i hear this so often on House (the tv show)? 👁️👁️ and why do you think they use it so often?

Alie Ward

My guess is that there are so many different symptoms that a Dx is a bit of a goosechase? Also writers are like "whats MS? Idk, put it in the script."

Marina D

Going to listen this weekend! I'm afraid there's a typo in the announcement (teally)..

Ranger France

I only recently joined here on patreon, so every Tuesday I check to see if it is a topic I may have asked a question on. When searching past posts for MS questions I saw that it was posted just over TWO YEARS ago. First instinctual thought for 0.5 seconds was "this is ridiculous" but immediately went to "holy shit 2 years in the making???? This must be the best and absolutely most insane ologist speaker. This is about to be an incredible episode

Alie Ward

Thank you for catching it! It’s been a long day :/

Alie Ward

You know, this was indeed a tough one to make and we also interviewed Dr. Brett Fling who runs an MS mobility research lab, but his audio wasn’t ideal and that was tough. We had nearly 3.5 hours of audio and tried to include broad info for people unfamiliar with MS, but also answer specific questions for those who have MS. So we went back and forth with a few versions, and tried to make it a deep dive but also succinct. It kept getting held because it needed more TLC, and then we requested the most recent medical updates from Dr. Boster which we folded into the ep. I hope it helps some folks out there 💖

g0ose0nTheLo0se

This episode was so informative! And I appreciated how much there was about other autoimmune disorders as well and early identification of MS! I work in Audiology and we do vestibular assessments— occasionally we see folks who are in the early stages of identification and we heavily encourage them to follow up with neurology as well because we know MS can affect balance and be hard to pin down! It makes me happy to think about all of the treatment research that is ongoing out there—thank you to all who dedicate their time and energy to helping others now and in the future!

JENN 'Benthopelagic squirrel' ALVAREZ

While I don't have MS i can attest that Brain tired is so much more exhausting than physical tired. (Stroke survivor²) Love the episode as per usual!

CARLOS L DE LA ROSA

I look forward to listening to this episode. One of my sisters was diagnosed a few years ago and has struggled with access to medications (she lives in Venezuela). She’s doing more or less OK and able to work, but I need more insights that could help her manage the progression of her illness and continue to have a decent quality of life (something hard to have in the current Venezuela). Thank you so much for taking the time to produce a quality, thorough, and up to date episode on this topic.

Clemens V

The result is a great episode for sure!

Pretty Bird

I don’t have MS but I have Trigeminal Neuralgia which has some similarities (demylenation) and some crazy pain. I wish I could hear this genius and dedicated human (Dr Boster) talk about TN!

Between Dumplings

Another excellent and enlightening conversation with a terrific expert. Well DONE. Years ago I had a scary neurological incident and the doctor asked me to lift the back of my shirt. Then, "tell me whether you feel one or two pokes of my pencil eraser .." I said "Oh you are ruling out MS!" He said how'd you know? Years before that I had been the family for a friend as she got diagnosed with MS. I'd been with her through her testing. It sounds like the field has progressed a ton since those days. I had no idea how prevalent.

Between Dumplings

Less than a day or two after listening to this episode I heard someone misquoting or sharing misinformation on Cannabis while discussing Pain on Fresh Air. How can the info shared by two medical experts be so different?

Abby Grieb

Dr. Boster’s worst and best parts of his job had me bawling in my car today ❤️ such a great episode!

Alie Ward

Oh, curious to hear what they said!

Alie Ward

You can reach him on social media, I believe!

Alie Ward

Your brain is working so hard! Tell it I say good job! And rest up.

Alie Ward

Yes, the balance issues and vertigo definitely seemed like an inner ear issue at first!

JENN 'Benthopelagic squirrel' ALVAREZ

Thank you! It was in 2013 & 14. At least when I forget something I can just say "theres a hole in my brain, I keep snacks in there" 😂

Pseudonym Jones IV

I was really impressed with Dr. Boster! Not enough that I'm looking to get Multiple Sclerosis, but still, really impressed.

The Other Maya

Fancy Nancy! You're pod grandkids are all sending you big ol cosmic hugs 🫀

spiderbeetlebee

Learned so much from this episode! Really enjoyed it and also Its given me lots of things to learn more about

Diana Staresinic-Deane

Alie, this episode made me cry big sloppy tears. Although she showed symptoms as a teen, my mom wasn't diagnosed with MS until her legs went out from under her while she was carrying my two-year-old self across a Kmart parking lot. That was 1978, and no family doctor had even heard of MS in our area. She steadily declined until she died of complications at the age of 49. This interview with Dr. Boster gave me so much hope, and I think I understand more about the disease after this episode than I did during the entire almost three decades I watched my mom struggle with it. What a joyful and compassionate human he is! Thank you. This episode is a gift.

Ted Vician

Throwback for the Gen X kids, but I used to participate in the MS Read-a-thon every year in the 70s. That was my first introduction to the disease. I recall it being sponsored by Henry Winkler (Fonz from Happy Days), possibly because it affected someone in his family.

Natasha Stroebl

Great episode and great expert! Dr. Boster also occasionally does question-and-answer webinars with the Overcoming Multiple Sclerosis charity. https://overcomingms.org

Casey Wente

If you're in the Columbus area, he has an in-person seminar coming up in early Dec. Look at MS News and Views and you can register for free there.

Casey Wente

I was diagnosed in 2019 at Ohio Health, the clinic Dr. Boster USED to be at before setting up the Boster Center for MS. I was going through my journey right as he was transitioning, so I JUST missed him. Thankfully, his colleagues at Ohio Health were stellar. I encourage anybody who has questions about MS or is a patient themself, subscribe to Dr. Boster's YouTube channel. He has a video for literally any question you can think of. Alie, thank you for finally connecting with Dr. Boster. When Twitter was a thing, I used to tag the two of you in stuff all the time. :D