Real Life Updates (Mid-ish 2021 Edition) (Patreon)
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Hey there, everyone. How are you all doing? Always well, I hope!
I met with the transplant specialist doctor a couple of days ago and an oncology neurologist right after and spoke at length with them about my situation to see what they recommend for it. They're going to be consulting my oncologist in my city and see what I can do next to move on from this chapter of my life.
The neurologist recommended I get another maintenance round of methotrexate sometime soon, before I do the stem cell / bone marrow transplant (which is my own blood taken, sent through a centrifuge, frozen, and given back to me after another very powerful dose of chemotherapy). I'll have to be in an out-of-state hospital for around two weeks before I would be able to return home.
The other option, if I choose to not do that, is to do 11 months of methotrexate and hope that the problem is eradicated that way. The neurologist doesn't want me to do radiation since that's more of a last-card-dealt move and something I can't undo once it's done (potential memory loss years later, other permanent side effects.)
There are apparently very few case studies of transplant vs 11 rounds of methotrexate to judge which would be best for me to attempt.
The docs said that it's rare for this kind of thing to be happening to someone like me, something that they usually only see in people much older. Because of that, they recommend the transplant. It's a one and done treatment, though stressful and a bit scary, to be honest.
I've come this far, though. Can only hope for the best and then... hope for the best.
I will likely have to pause payments for June, too, I apologize. (Edit: I'll be keeping June going!) But I'll try to make the best of it all and work on what I can. It's one and done, after all. I'll be back into the swing of things. 😊
Thank you for your patience and love. I hope that I can always give that back to you as best I can.
-Lucky 🍀
(And please do take good care!)