Health Updates: 😴😵😴 (Patreon)

🎶 Won't you take me to sleepy tooooooown 🎶

Listen...good news first: I have to say that the Botox is definitely getting better and the migraine pain is so infrequent now! The first few treatments, I was still having a lot of pain daily, but it was just...less severe. Which was great! But nooooooow I honestly don't have a ton of brain pain anymore. I still have to take pain meds for it...often... But more often than not, the pain does get better, whether on its own or with medication 🥳

Like before, I am still having migraines, but just much much less pain. And honestly, I feel like it's even more of an adjustment than when I was still having the migraine pain daily. Sure, it was always odd to me feeling like I couldn't tell if I had a migraine or just a headache...but now I have 7000 auras and little-to-no pain 😂 Which is great, but reeeeeeaal wonky feeling 😅

I'll just suddenly start feeling dizzy or out of it, or I'll have pain in a random part of my body for no reason because my brain got the signals confused. Or I'll have muscle spasms, or my eyes will feel funky, or everything will look orange...etc. 😅 And very occasionally, there will be brain pain, as well.

So Myrna is having a time, but she's generally doing much better! 🥳


Everything else, however... 😅😬

I. Am not sure I have ever before been so consistently so exhausted. 💀 ...I suppose with the possible exception of that 7 days period of time when I couldn't sleep more than 20 minutes a night no matter how many sleep aids I tried... 😅

I have always been really good at pushing through and ignoring how my body feels when I need to get things done, but recently, it is becoming much more difficult 😅 And every time I stop to just sit and not work on other things, I genuinely don't know how I can still be awake, much less functional 😬 Just so sleepy 😴

And I feel like my body is otherwise just fighting me in every way it knows how 😅 My joints are a mess and don't seem to know where they belong. My blood sugar is very confused about how to keep me alive. 😂 My tendons want to rip themselves apart? For some reason? My skin is...very angry 🫠 My heart rate is all over the place... And I've decided to name my heart Fred.

Now I can say that Fred and Myrna don't play well together 😂 Fred really just likes to push Myrna's buttons. Fred likes to pretend that we're in high intensity situations, and Myrna does not handle that well 🙈 And like... I hate to self-diagnose physical health issues, but like... I would like to know why my doctors have never thought to try to figure out if I have POTS...

For anyone who doesn't know, POTS stands for Postural Orthostatic Tachycardia Syndrome. The main feature of this is an abnormal increase in heart rate upon sitting up or standing. So many of the symptoms are things I experience... And could that be something else, absolutely! But like... I don't know how I can tell my doctors that I sometimes faint when I stand up too quickly and they don't even consider looking into that, maybe? 😅

I always tell them, "yeah, I think it's an orthostatic thing" and they're just like "okay, cool, that's normal and totally fine 👍" But, um... I don't know anyone else in my personal life who has fainted 5 times... And to me, I'm like "I can count that on one hand; that's not that many times", but when the average is zero times... 😅😬 Maybe that's a problem, idk.

Anyway...my heart rate is a mess and while I haven't fainted recently, I have had to sit down because of my heart rate... Many times. It's fine, though, right? 🫣

All this to say...my body is a temple. But it is a very run down temple, and someone has just spent the past few months chucking rocks at the walls 😅

But I am managing, and that's what matters 😎