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I hate making these posts because I feel like people think I'm saying that I won't be doing anything on here worth sticking around for and that always causes a small exodus of about 30 people. LOL. But that's not the case. I plan to put out some more chapters in the next couple of days. I know I've been slow, but I've had numerous doctors appointments this week. Four to be exact. And I have 4 more next week. Its crazy how many different people are now managing my care. I have five doctors (All women, which is pretty cool)As someone who spent 17 years in the medical profession, I never thought I would spend so much time in the hospital NOT getting paid. Anyway, this post does not contain any relevant information if you are only here for the books and don't want to hear all my personal BS. Feel free to ignore it entirely. I will NOT be offeneded. I'm honestly tired of hearing it myself. I'm using you guys as a diary today more than anyhting. As most of you know, last week (was it last week) in the last ten days or so my blood pressure crashed to 66/55 and I ended up in the hospital. For the last several months my blood pressure has been either super high or super low with no rhyme or reason making it very difficult to treat. At first they thought it was severe dehydration, then they thought I was on too much blood pressure medication, then they thought it was my Vyvanse but recent labs have shown that my cortisol and aldosterone levels are tanking. What does that mean? I have something known as adrenal insufficiency. In my case they suspect it is a fairly uncommon condition known as autoimmune Addison's Disease. I haven't confirmed this diagnosis. I see the Endocrinologist on Monday, but given my labs, this is what they suspect has been my problem for almost 10 years now. I know people probably hear alot about people's burned out adrenal glands and people like to push all these health 'cures' for people who are overproducing cortisol due to stress. Well, I have the opposite problem. My body is no longer producing enough cortisol. Cortisol maintains your blood pressure, heart function, immune system and blood glucose (sugar) levels. Without them it can cause an adrenal crisis like what happened the other day. Luckily, since my cortisol levels are low but not completely gone, I didn't need emergency medications. Which is good because none were offered as nobody thought to look for this. On the one hand, it would be nice to have a diagnosis once and for all, on the other, the treatment for Addison's is a lifetime of steroids which is shitty on a whole different level. Anyone who's had to take steroids long term knows the three page lists of side-effects that can come of it. This is mostly my mindless rambling and processing. If I have this disease, stress could literally kill me. Which feels ironic when I think of what an insane workaholic I am. However, I'm taking things one step at a time. If anyone has Addison's or knows anything about it, I'm all ears. I was an endocrine nurse for 3 years but my patients were predominantly diabetics and people with thyroid issues. Adrenal problems are surprisingly rare given how often people are trying to sell me cures on tiktok and Instagram. TL;DR: I am still sick, attempting to rest, but will be catching up on chapters over the weekend.

Comments

Echo

You are amazing! Take the rest you need! Sending good vibes your way!!

Kelsi Myers

I hope you get your answers soon! I for one plan on continuing my membership no matter how much or how little you put out each month! Your books always bring me such comfort and I love being part of your community ❤️

Lily Dagdag

I hope you get some answers. Not knowing what’s happening can be the worst and it’s always easier to move forward when you know what you’re dealing with. Get some much needed rest and know your loyal fans are here waiting!

dandjarin

I’m so sorry you’re going through this! I know there is nothing to really say except I’m sending you good vibes. As for the people who leave after a small pause, I find that sad. People are allowed breaks. And for what it’s worth, you are the best Patreon. I definitely get my money’s worth. No matter what though, your health is the most important thing. ❤️

Anastasiya Shubina

Please take care of yourself!! I can't speak for everyone, but I think the majority of us support authors on patreon because we value you as human beings as much as we love your work and want you to be healthy and happy.

Opal

I'm so sorry you're going through this. Unfortunately the sum total of my knowledge about Addison's is "JFK had it", so I'm no help. But as someone who struggles with chronic health issues (I feel the "I don't want to make this sound like it's all about me, but..." thing HARD), I say this: go easy on yourself. Your life is in upheaval and it's scary and exhausting and you don't know what to expect tomorrow let alone ten years down the road. That's ok. I mean, it sucks donkey balls, but it's still ok, because we can acknowledge it sucks donkey balls and you will learn to work around the donkey ball sucking. Even if that workaround ends up with your life looking different, it will still be your life and that will be OKAY. Hugs.

Morgan S. Hazelwood

Yikes! That's a lot going on. I hope you have a workable treatment plan soon!

Stephanie Buchanan

You just need to worry about taking care of yourself. We will wait and be here.

Lita

Please just take care of yourself. We can always re-read one of your previous books if we think we are going into withdrawal!! I had a colleague at University who had Addison’s, and her accommodation was a cot in her office so she could take a nap after lunch everyday. Seemed to work out very well for her. But that’s all I know about Addison’s. 🤗🤗

Carmen L

Please take care of you and I hope you get yours answers soon! As someone who still has zero answers after a 21 day hospital stay, I really hope you get the answers.

kay

feel better we’re all here for you :)

Saleena Davidson

Please take care of yourself. True fans and admirers understand that you are only human and while dealing with health issues one cannot simply turn on your writing like a computer database. We will wait. Do what you need to do. Sending hugs

Aimi Yokaiko

I hope that you get any answers that you are seeking, it is always terrifying when you go through test after test to figure out what is THE answer to what is going on with your body, only to sometimes not even get an answer. You are so strong and amazing, keep taking your time and one step at a time! We love and support you thoroughly through murder and canoodling (thick and thin basically). Thank you for always being so open and sharing with us 🫶

Kerry Frisina

🤞I hope you can get answers you need. It is so hard when changes in your body happen w/o an obvious cause. 🙏 for you & your health care providers as you continue this journey! ❤️🫂🫶

Nikki Mitchell

Hugs and healing. You are more important than a book and those who care about you are still here.

Annette

Take all the time you need, your health is priority. This loyal fan will be waiting. 🩷💚🧡❤️💛💜💙

Sophie Williams

Big hugs. I'm glad there is an answer but I wish it didn't come with the *joys* of steroids. Look after yourself and plus loyal and understanding folks will be waiting and wishing you well.

Tee Reader

Those who leave are missing out on you and your amazing work. Your health is the most important both physically and mentally. I hope you have a diagnosis soon. You are doing incredible don’t forget that ♥️♥️

Samantha Belman

Take care of yourself. Health comes first and there are those of us who are loyal and will happily wait for more chapters whenever they come. I can empathise with you. I spent 3 years seeing a myriad of doctors trying to diagnose a rare and weird respiratory disease. I’ve been on steroids for long periods of time and know how they are a necessary evil (see what I did there 😄). Good luck and I hope you find a diagnosis for your peace of mind and so they can treat you properly and you can get better quickly.

Kat Balog

You are awesome and you need time for your health too! My mom has Addison’s. She was just diagnosed about five years ago after twenty years of symptoms. They were treating her for thyroid issues instead of treating the underlying cause. She finally found a doctor who did a week long battery of tests. All I can say is that it’s a good thing they are sending you to a specialist and that you can get some answers! I have Hashimotos which is also an autoimmune disease and was on levothyroxin for many years. It’s hard to regulate weight and exercise when you feel like shit constantly and are craving something that you have no idea what your body wants. Salty snacks help with adrenal issues according to my mom. She drinks pickle juice a lot. Always bring some extra meds with you in case you get stuck somewhere. And this happened to me so just in case you are on antidepressants, make sure they don’t counteract your steroids. Steroids can also cause depression as I am sure you have read.

Heather Ortiz

My mother-in-law has been dealing with Addison’s for over a decade. Look into a cortisol pump implant, it is still new but it has shown promising results. The meds are hard on the body so take care of your bones and immune system. Sending prayers and good vibes your way ❤️

Keagin Rose

We ❤️ you so much! Take care of yourself!!!

Kelsey Sorensen

Autoimmune diseases are tough, but it will get easier! A proper diagnosis and treatment plan can be life changing!! I had to go through this process as well, and it will get better!! Take the time you need and make sure your mental health is your top priority!! Know that we will be here supporting you from afar:)

Beth

I'm glad you're getting to the bottom of it and hope you get those final answers you need so you can start feeling even better.

kyrstin morrison

Hope your health improves or at least you get some definite answers

Maik

I'm so glad you are finally getting help and a diagnosis! Take your time!

Kiley Evans

Please put yourself first! I would stay a patron even if you didn’t post for a year :) you’re just that good!! Wishing you the best, and I hope you get answers and solutions as soon as possible ❤️

Snow Bite Pleasure

Thank you for your forthright vulnerability and take good care of yourself! 🫶🏻

Sharon May

If people can't understand that you need to out your health first then them leaving here because there isnt something new for them to read will be no loss. There are plenty of things to re-read, and some lovely NSFW art to drool over. Take as long as you need to feel better. We'll be here when you're ready x

Ryann_Eliz

I’m so sorry you have been struggling with all of this but happy you finally have a possible diagnosis and are plugged in with the necessary specialists!! I’m a Family Medicine physician working at an academic medical center and I have some pts with primary AI (Addison disease) or secondary AI. While it’s a tough chronic disease requiring lifelong meds for most and vigilant ongoing surveillance to adjust dosing during periods of stress, almost all people feel tremendously better once they are on correct dose of meds vs when they were off meds. And of course the goal is to find the lowest effective dose of steroid to prevent over treatment and all the nasty side effects that can go along with that. Lmk if you ever want to chat in more detail or have questions I could try to help with. It sounds like you already have plenty of medical professionals in your corner now but I’m happy to be a supportive virtual shoulder if needed!! Sending you hugs and well wishes from afar 💞🤓

Skye Kravcisin

Please focus on rest!! That is more important than anything! I'm recovering from uterine cancer surgery this holiday season and I've had to practice saying no a lot! It's hard but hang in there and REST REST REST!! 💜💜💜

Dana Price

Frankly, I like to hear about your personal BS. You never know when you might help someone else with what you're going through, or inspire people to keep on keeping on. If you want an inspiring story/person with autoimmune disease - lyme disease, bartonella, mental health issues, anxiety and more and who is also very, very driven watch Hi Ren by Ren on YouTube (of you haven't already discovered him). He's an independent artist from Brighton who is only 34 and he has been through hell for half his life. He has a series of six YouTube videos where he reads out everything he's dealt with and his frustration trying to get diagnosed - it took 10 years. Anyway, he has inspired me to at least make myself be grateful for the simplest things. I the meantime, your health is more important than any chapter.

Alissa

I am quite sure you are receiving enough advice, so I am just sending my intentions. I hope you find all the answers you seek and that treatment is swift and effective. I am typically against capital punishment, except for anyone who tries to sell essential oils to people with chronic illnesses. That should be punishable by guillotine.

Donald

I take hormones on a regular schedule for the rest of my life. When my levels are stable I feel like a human again but any disruptions of my schedule can lead me to literally crash. You will be fine but make damn sure you have a dedicated team handling your care. If you live in the U.S. make sure there is no conflict with your insurance provider. There are wonky laws about certain steroids that can make traveling from one state to the next hazardous.

Courtney Slater

I hope you get your answers, & can start to feeling better!! In my experience, most people have their own "normal" amount of stress that may seem either on the low/chill end or on the super stressful/crazy end to others, so whatever your "normal" is (deadlines, being a "workaholic", family, etc) seems to work for you. Just manage what you can, & don't be afraid to drop the plastic balls you're juggling when you need to. 🖤🖤

Bookworm

Sending all the good vibes that you get a diagnosis and can quickly start finding a new "normal" to get you feeling better💜

Barb Tuttle

Your health comes first and foremost! Rest and I pray you get well soon!

Lauren Gibbs

Sending you all the hugs and good vibes!! I recently also got a diagnosis for something that's been affecting me for almost 10 years, so I'm sending all my well wishes to you! It can so validating but also so terrifying?? Regardless, I'm here to support no matter what!

Karli

Sending good vibes. Stay safe, we support you!! Your health comes before anything!! 🤗🥰

Menotah

Please focus on yourself and your health before worrying about the chapters. Your health is most important. Virtual hugs and hopefully you can get the answers you are looking for and can start healing.

LetsGoToya

Thank you for sharing this and please do continue to use this platform in any way that helps you process what is happening to you. I know I'm not the only one here who appreciates ALL of the posts you share with us, not just the creative stuff. ❤ I'm glad that you're closer to pinpointing the problem and I will keep you in my prayers for good health, a treatable diagnosis, and a non-invasive treatment. Sending love ❤

Laura B

Another writer (the person who opened my eyes to Patreon) made the point several years ago that patronage is a practice of long standing. So I choose to participate here to support 2 of my fav authors & 2 of my fav knitting designers. I love the extras, for sure. But my main purpose is to give a bit of financial support to four folks whose craft I admire. It turns out that all four share bits of their process and parts of their lives. I love learning about how people approach their craft. I feel honored when they choose to share about their lives. Onley, please take best care. I hope you can get an accurate diagnosis.

Sarah Ballard

Sending all the healing vibes. What work did you do in healthcare? I too work at a hospital and have had to come to the ER a few times. Thankfully the doc I liked was working each time 😆

Elizabeth

Please take care of yourself. Hoping for definitive answers for you soon.

Leslie

I really hope you get some definite answers soon and one that's not difficult to manage. I feel like garbage a lot myself with several chronic conditions, so I get how you feel when you post about it. Keep posting! Don't isolate yourself with it, because we all care! 💜

HORRIDFIXTURE

Focus on getting better!!! I am here to stay!

Cass

I’m glad you’ve got multiple people persisting with trying to get to the bottom of it all and giving you such good care 💜

AndRhysHend

Please take your time and get better! 🫂

Maggy Helwig

Remember that your health is a priority. I'm glad you are close to a diagnosis. While a life of steroids would suck, at least there is a treatment. Know that you are in the thoughts of a lot of people.

Jayce

damn this sounds intense! I'm sorry you're going through it. glad you have an answer for why it happened!

Theresa Derwin

Sending love. As someone with immuno suppressed conditions and chronic illness, A diagnosis is half the battle. Much love x

Amanda Flyte

Don't be afraid to put yourself first! Rest, relax, take care of yourself. That's way more important to us than any content <3

Lely

Yes getting a name is better even if is the one you dont want i was missed diagnose the first 20 years of my life i have LES hashimoto and a few others autoimune disses the stress honey u can feel the change the actual change in your bodym i took theraphy to deal with all that and have an amazing pshichologist that helped me see the signes prior a crisis or crash has help a lot. I have been on several inmunsepressant since age 20 and taking steroids for the last 25 years ..my cortisol levels are - something due to the time so ill be taking prednisone till i die like 80 years more hahaga lots of love.. pleas dont let you endocrinologist to tell u is in your head or u r over weight like in my case, hun i have eyes give me something not related to panfkets hahaga best of luck.. xoxo anything im here!! In DR but here 😃

Lena

I don’t have anything specific to offer for Addison’s but I can definitely empathize with the idea that getting a diagnosis sucks when there isn’t a great treatment plant but it’s also incredibly validating after years of trying to find the answer. ❤️. I hope you can start to feel better! 🤞 you find answers even if the answers aren’t ideal.

Dawn

Fell better and rest yourself. ❤️Nothing on your specific issues but I was finally diagnosed a couple years ago with RRMS and although it sucked and was scary finally knowing that was the diagnosis and finally getting proper treatment has gone well. It took about 10 years to get diagnosed; finally got the right doctor who knew to look for that. So I feel your stress on that. Now hopefully they can get you on the right tx path. I also have thyroid issues myself, so double the problems that can make you feel tired. Hope your doctors can help get everything settled back down for you and you can feel good again.

K P

glad youre on your way to finding out what is wrong. hopefully you feel better real soon!

Jennifer Quinn

Autoimmune disorders suck ass. I have Discoid Lupus, which presents as lesions on my face. As crazy as it sounds, I am so grateful that it's this incarnation and not systemic lupus. There's no treatment for it other than corticosteroids, which are no fun. Though it's not as severe and life-threatening as Addison's, it makes me feel very ugly as I always have red scaly patches on my face, and have extensive scarring on my nose and chin. Take care of yourself. I hope the diagnosis is something more treatable.

Shawna C

Thank you for sharing and I hope you start to feel better soon. Please take care of yourself first. I may have just recently subscribed but I am not going anywhere. You are so talented and creative. Been a bit obsessed with what I’ve read so far and can’t wait to discover more. 💕

Kaye_tee_bee50

Please take care of yourself. You are more important than the stories. I'm not going anywhere and am happy to give you my money. Even with all your health issues I have had more engagement with you than any other author I followed on here.

Rachel McCarthy

I will always happily read whatever you choose to share, be it writing things or personal things. Your health is important, and I'm glad you have gotten some answers as to what is going on. Take care of yourself!

Melissa

Please take your time and do what's best for your physical, mental, and creative health <3

Tammy Bush

As a fellow nurse and avid reader I am invested in your health. All jokes aside I really hope you get your diagnosis even if it’s a shitty one as not knowing almost makes it worse. I hope you have a world to escape to that you give us. Take care and Happy Holidays from Australia 🇦🇺! Tammy Bush 651158ac-a6b3-4c5a-8ebc-0cfae5c36713.png

Dezi

tbh, I am so grateful to you for sharing so much. I have more than one orphan disease and more than one autoimmune disorder and it is painfully isolating and awful in a multitude of ways - one of which is that nobody wants to talk about the fuckery that is being this sick and what it actually means. like having to take awful medications that absolutely destroy the body and emotions but I’ll die without them. that getting a diagnosis is both relieving bc you know but also awful when it means being stuck with it. and they always take years and years of being gaslit to get. that ER visits can be frequent and it’s so often traumatic, especially with chronic PTSD from a lifetime of trauma that means pain doesn’t show on my face so doctors dismiss me until it’s almost too late. and so many other painful, hidden things. the way you are so open with us reminds me I am human, when most days I don’t feel like a person. you do so much for us - so. fucking. much. - and your willingness to be open here is something I am so thankful for and I deeply respect you for it. thank you for being you, and for showing up as you are.

Amy W

Giving you the biggest virtual mom/friend hug from the PNW and sending positive vibes your way for your new journey. I cannot imagine what you are going through, nor can I begin to say I understand. What I can say is that I am not going anywhere as a reader or fan. Take care of you. Writing can wait. You come first.❤️❤️

Edward Wajs

When you described your BP drop last week, I did a little bit of internet research on some of the common causes. I'm not a doctor (weak stomach and can pass out at the sight of blood, so I went into engineering) but I was really good at biology back in the day. I'll send you more info by direct message, but I wanted to let you know that I have a personal acquaintance who was diagnosed with Addison's back in the 1960s or 1970s and has been on steroids ever since. I'm pretty sure she's in her mid-70s now. I know it's anecdotal and every person is different, but I wanted to pass along at last one good story about a person who's still living a very long life with an over-50-year-old diagnosis of this illness.

Mairéad Ni Clubhain

I love reading your updates and hearing how you’re doing. I hope all the appointments go well, the outcome a clear diagnosis and a life/medical plan to keep you in good shape. Big hug, it all sounds so stressful. Thanks for the update xx

Tonya McCarley

Hopeful you start to feel better! You are a bright and shiny star in our world; we want the BEST for you! We hope you can rest and start to feel better. We love you and the spectacular world you created!

Mell

Love any updates health, chapters or life in general its always good. Rest relax and have fantastic holiday fun

Monique Suna

Take care! Your health is more important! Rest well!

Lux

Hope things get better for you

Radical Magpie

I’m so so sorry. Sending so much love as always 💫❤️💫

Natalie Hanson

So sorry you are dealing with this. 💔 I know from my own health shitstorm that unexplained medical symptoms are the worst! 😞 I hope you’ll find a kind, patient healthcare professional and that you get some answers soon.

Elsha

Please take care and I appreciate the updates and appreciate you taking the time to send them when you could just be using the time to focus on yourself. I wish you health and healing.

Ireadromancetoescape

So sorry you are going thru this 🤞 for answers soon. Thank you for the updates, Sending hugs 🤗

Caitlin Ashley

Oof I totally understand the dichotomy of wanting a diagnosis but also not wanting it at the same time

Liz Unger

<3 sometime just having an idea what's going on is a relief. Take care of yourself!

Kathy De la rosa

Take care of yourself and get the rest your body needs so you can heal!!

Sid

I completely understand the frustration of not have a reason for the way you are feeling I hope you get answers soon. And don't pay attention to anyone who leaves when you have to push back time lines they obviously don't want an author they want an AI bot