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Discussion thread: Disability Sociology episode is live! What did you think? (Patreon)

Published:
2024-07-04 18:28:07
Edited:
2024-07-04 18:32:39
Imported:
2026-06

Content

This episode is up and published for the listening! It's the long-awaited release of a chat we had months ago, saved for Disability Pride Month. Guinevere Chambers is a sociologist who studies so many aspects of disability, from sexuality myths to pop culture, social constructs, accessibility, criminal justice, and gender.

Thank you for all of your stories and questions for this one; we answered as many as we can and I hope this episode inspires you to elevate Disability Pride Month and/or advocate for yourself and others.

Also, happy Caesar Salad Day for those who celebrate!

Rolling into July,

Poddad

PS: Edited to add that no sooner than this episode went live -- literally a few hours after -- and Jarrett tested positive for covid. So as discussed: nope, covid has not disappeared. We left our hotel and are currently quarantining in Chicago in an empty apartment very luckily lent to us by a friend. I'm masking to bring him meds and soup in the hopes that I don't catch it and strand us away from home longer. Gah! Be careful and if you have tests around, use them before you see your immunocompromised friends and fam this holiday weekend. <3

Files

Disability Sociology (DISABILITY PRIDE) with Guinevere Chambers - alie ward

Sexuality and disability! Invisible illnesses! Airline frustrations! How many of us are disabled! July is Disability Pride Month, and professor, researcher, activist, and Disability Sociologist Guinevere Chambers joins to bust myths and provide perspective on everything from the history of ableism t

Comments

The Zarate-Sanderlin Family

Outstanding, thank you for this episode! Joe, the dad of the family, is a therapist who teaches counseling psychology to graduate students, in particular Cross Cultural Psychology and Human Sexuality, and plans to share this episode with their students. The voice of someone with lived experience who has gone on to educate on these issues is so valuable for therapists to hear as many of us support people with silent or invisible disabilities. And, yes, COVID is very much present. Joe ended up with it twice in 6 months though luckily it was mild, they had the privilege of access to Paxlovid based on age and health, and the ability to quarantine in the house so family members didn't get it. We all hope you all make it through without issue.

Emmett

Get well soon podmom and thank you for this episode Poddad + team! Super informative and helpful ❤️

Alli B

This was so good. I learned so much and will be sharing this episode.

Between Dumplings

So sorry! Hope you don't catch it. Can you get to an herbalist for an immunity tune-up? This episode was great. Reminded me I'm behind on posting about my Chinatown tour with a disability traveler expert who lives right here! Will send him this link and also include in the post. One thing I want to add, it applies to many aspects of life: DROP the "the". It automatically objectifies and distances. "The homeless" "the poor" "the disabled". No. Nope. Also very happy to hear the discussion around agency and disclosure and disability which may not be obvious. Tricky but again, agency. Who gets to decide? The person with the disabilty. We are soo behind in this -ism in this society. We allow some pretty awful language and policy and behavior to go unchecked in this demographic that we would absolutely not accept in other respects. This episode an excellent intro for many of us who may have been wondering "how do I start the conversation?" As always, ask. I've never found that an open and honest question is met with a negative response. PS Electric cars are not the friend to anyone with limited vision. Just lethal. Especially if you live in a city like Boston where drivers decided long ago that yellow lights are useless and red lights can be ignored about 50% of the time.

Logan Murray

So sorry you are dealing with a COVID infection/exposure, hope you both take care of yourselves! This episode was so wonderful and informative, I’ve been trying to share it with as many people as I can! It also meant so much to hear Long-COVID and ME/CFS discussed along with the need to continue Covid precautions. I have been homebound and bedbound for two years due to these illnesses and it feels so frustrating and lonely to see a virus/illness ravage our country and not be discussed.

Diana Staresinic-Deane

I always learn something from Ologies episodes, but this one is one I'm going to think about for a long time. Thank you for that. I hope J recovers quickly and that you can avoid it.

Mie [me-ay]

get well soon podmom!!! also this was such a great episode 🫶🏻

Hope J 🏳️‍🌈

I really appreciated this episode and enjoyed it a lot. I would love to have another episode on this topic too! I’ve been following Jessica Kellgren-Fozard online for a couple of years and have learned a lot from her channel also about disability and queer history. Also, hope everyone stays healthy! I had a scare at work after being exposed to someone with COVID but thankfully still haven’t contracted it, which I know is a privilege as most people have had COVID by now.

Zuleika Pevec

My child has really picked up on the super-crip trope, especially of blind characters. He wants to be blind because he’s sure he’ll be so good at something if he is. I really appreciate the sociology episodes…I always learn so much, and hopefully am a better person for being better informed.

Susan G

I hope pod mum is feeling better soon and that you don't catch it. Thank you so much for talking about COVID still being present on the pod, it feels likes almost everyone I know is ignoring it.

JENN 'Benthopelagic squirrel' ALVAREZ

Thank you for mentioning mask. I haven't stopped masking since it all started. Also, I don't consider myself disabled (2× stroke survivor ) but I have had someone ask 'why do you walk like that? ' apparently I have a pimp walk. 😂 it made me VERY self conscious. I can emphasize and I'm sorry.

AussieColin

Best wishes to Jarrett for a quick recovery. Oh, and you too! ;-D My long-term gift from CoVid has been an irritable tickle cough that comes back every few months and lasts for a few weeks. You can imagine how that makes things difficult for a teacher! Still, considering that I had a number of comorbidities that meant I didn't have a good risk of surviving the infection at all, I can't complain!

Aaron S.

After listening to this episode, I wanted to share it with my wife, who is deaf. Unfortunately there's no transcript! Of all the episodes to have a transcript on Day 1, this was it! Especially an episode recorded a while back :( It was also disappointing to repeatedly hear the message that disability is incredibly diverse, yet have deafness be presented from a primarily ASL and Deaf Culture perspective. My wife and her peers who speak, lipread, and listen run into this myth regularly, especially in the media. When I told her about this episode, she pointed to an old article she wrote about this [1]. Sadly, it’s still valid. She, like over 90% of children who are born deaf, has two hearing parents [2]. Many of these parents choose to raise their children in their own language, culture, and community, rather than with ASL. For example, over 65,000 children in the United States have received cochlear implants. Many of these children grow up with English as their primary language and attend mainstream schools. Like my wife, they are able to participate in society independently – this was what motived her parents. There are families for which ASL and a school for the deaf is the right choice, but it is incorrect to imply signing is the right, or even preferred choice, for every parent of a child who is deaf. On the whole, the episode was great and there was excellent content for people new to disabilities. It was just unfortunate that some biases continued to be propagated. [1] Written by my wife, https://theglobepost.com/2018/09/25/deaf-hearing-divide/ (Harry Potter reference, predated JKR’s visible TERFiness) [2] https://www.nidcd.nih.gov/health/statistics/quick-statistics-hearing

Alie Ward

Hi there and thanks for the comment and the links! Though we recorded this months back, I was only finished editing and recording about 5 hours before the episode went live (I've been ill a lot this year and had surgery + recovery in March and am always on a race against the clock week to week...) so unfortunately we don't have the professional transcript that we pay a transcriptionist to make quite yet. However, Apple Podcasts has rolled out a transcription with each episode available upon publishing, and available now, and I hope that will do in the interim while Aveline is able to do her part with the professional one. I assure you that I try my very best to work ahead and with the best intentions, but am sadly vulnerable to my own human limitations. Thanks again.

Alie Ward

Thank you so much! Isolating and masking in the same house, and I'm still negative.

Alie Ward

Thanks so much! I haven't gotten it so far and he is slowly feeling better...

Alie Ward

Oh great. Yes, July lasts a whole month so please do share

Alie Ward

Thanks so much for all this! Still negative (knock on trees)

Alie Ward

Thanks so much! What in particular resonated? Always love hearing about the aha moments for different folks..

Alie Ward

Thank you so much! I will pass it along to him (we're texting from across the house)

Alie Ward

Oh wow -- yeah, it's pretty common and well-intentioned but hopefully months like this raise awareness for other approaches

Alie Ward

There's such a spike especially now!

Alie Ward

I always have a freshie in my bag and I still get "really, why?" looks...

Alie Ward

Oooof, not fun! I still haven't had it and I am hoping to evade it once again. We're testing and I'm still neg and Jarrett is feeling better and sleeping a lot.

Andrea Marie Squirrel Tree Roggero

Amazing! I work as a caseworker for adults with developmental disabilities for my county board and this was so interesting to listen to. I was just having this conversation with my girlfriend about 2 weeks before this dropped and when it came out I was like damn! Somehow I don’t recall seeing questions for this episode. One thing I wish this addressed was if an individual has a legal guardian how things can get a little more complicated. Also, I recall hearing about some of the labels people should avoid using but I don’t remember anything about the derogatory use of the r word, which I think could have been briefly addressed. Sorry if it was, I have adhd and sometimes miss things that are said Overall a great episode!!!

Aaron S.

We've had those years too – good luck! I'll point her to the Apple feature.

Diana Staresinic-Deane

I was particularly moved by the conversation about who is included in the conversation about what disabilities need treatment or "cures." It has me rethinking: What does it really mean to be healthy? Who gets to decide what it means to be normal? Humanity would be so much less interesting if we all looked, moved, and thought the same way, and yet there is still this sense of a baseline many of us are conditioned to strive for. And yet, I hate for anyone to feel pain or not be able to do things they want to do. (Like you, PodDad, I had a mom who had MS that was very progressive, and she struggled with how it impacted her life). The whole episode drove home the importance of people with disabilities to have their own voices heard when it comes to their own health.

Logan Murray

I got to catch a little of it but my symptoms were flaring up so I had to rest. So amazing how much they raised!!

Wandering Wyatt

Thank you for this. I am in my early 50s and recently got hearing aids (glasses since I was a kid). Thanks for bringing up that comparison. Don’t considered myself disabled- just shitty hearing genetics. When it comes up, I like talking about it because I’m trying to normalize it (hearing aids at a younger age) and encourage people to get checked if their hearing isn’t great.

Priyal

I keep telling my husband how much I love Ologies and I think he would love it too, but he's deaf (autocorrect just changed that to dead....) and transcripts just aren't the same as the live banter of a podcast. I don't think he really considers himself disabled, but sometimes people's reactions to his hearing loss are... Interesting to say the least.

Adam Foote

I listened with my wife over a few days. We thought this was a great episode! I can echo what a lot of people are saying here. I don't consider myself disabled because I have anxiety and I wear glasses. In some ways both of those are socially acceptable and therefore don't feel like disabilities. Also my wife started poking around Reddit because of one of the asides. She has cerebral palsy and found the CP community on Reddit has a lot of good thoughts about non-medical questions, like what to do with single shoes (her feet are very different sizes)

Elsi Kay

It was a fantastic episode, I was easily kept keen and interested the whole long time. And I'm SO glad you included invisible and chronic illnesses, especially long covid and ME/CFS, it's just something that's not talked about nearly enough, all we keep hearing is the tired old line of "long covid symptoms may persists for weeks or even months" . How about letting the public know some of us have been ill and unable to participate public and social life for years? Maybe that would bring them back to caring for covid precautions. There was one thing that did bring me momentarily down from my ology high. I'm trying not to be all main character syndrome-y about this but the one listener ask you included had a line about brainfog and how it's only taken seriously "now that "healthy" people are experiencing it" and I'm not going to lie, that felt bad, it felt a bit like a soggy slap after spending an hour exploring all different ways of being and becoming disabled and feeling accepted and accepting that label. Obviously it's rubbish that it took a global pandemic and millions of new post-viral illnesses to get medical world interested in brainfog and chronic fatigue, I'm sure it's really frustrating for those who have lived with it for longer, and this ask was of course sent in before this person had a chance to listen to this great episode. But just the assumption that if you were healthy person before pandemic you're now a healthy person with some brainfog, when no, we've been ill and various levels of non-functional for years now, so we're a new huge group with an acquired disability. Just thought I'd mention it!

Jill Savory

Loved this! Would make such a stellar smologies! My favorite and most vivid week of school was when I was in 1st grade and we had “disability week”. We got to meet and learn from people with limited/loss of vision, hearing, and mobility and a person with Down syndrome. We learned how to be respectful, how to interact with people these disabilities, and how to offer help in public. My teacher planned all sorts of activities so we could see how important accessibility is and so we could practice through play the roles of offering assistance. No joke, without this lesson, I would not have known any of that info. No where else in my life was I taught how to do those things (which is NUTS). The first time I offered assistance to a fully blind person was college and he was surprised I knew how to guide him (on the back of the elbow) through the stupid-crowded Chick-fil-A and it kind of broke my heart. When people offered to assist him in public he said they often treated him like a child or spoke to him really loudly (???). While I’m sure my nervous and totally awkward offer and assistance was not perfect, I was thrilled he felt respected. American society in particular does a shit job of preparing humans who can see the world from various perspectives - whether it be culturally, racially, socioeconomically, or ability. There is certainly good work being done, like this! Thanks podrents and Gwyn! 😊 Hope podmom is feeling better!

Jill Savory

This happened to our kids too! It was a really weird conversation starter but I was glad it happened. I’m excited that there are more characters with disabilities represented and their differences are not plot points, just there. I’ve found myself wondering “when are they going to address her crutches?” Because I am so used to that happening. I’m hoping this shift will balance out my kids’ perceptions of disability and “supercrip”-ness.

AJG C

I would recommend the book “Disability Visibility” by Alice Wong. It’s a great book with first person stories from people with disabilities!

Devyn

I loved this episode, I’m a counselor-in-training and love to learn about how to promote the dignity and wellness of all kinds of people. I would love to hear another episode that goes deeper or maybe more focused on one population? Thank you for all you do! 💛

Chris Moore

This was on of the best Ologies episodes, ever! Guinevere was brilliant, informative, and clear, and, dad, you were great: vulnerable, asking great questions, and fun. Have been and will continue to share the heck out of this episode!

Brad

This show was an eye opener as someone who has a disabled child.

Megging

What is the legacy of the creation of the Stalacpipe Organ, the largest playable instrument in the world, to modern science and cave exploration? Is it possible for tourism to benefit a cave system more than the installation of foreign materials and manual “refining” of natural acoustics damages that system?

Bianca Palm

Hey fyi you posted on the wrong thread, make sure you post on the caves one to get your question seen :)

Jenna Congdon

How big does a lil crevice need to be to be considered a cave? My husband and I jokingly call any tiny rock overhang or hole a "cave". (Then we have to look into the cave to see what lives there!!...usually nothing, lol). Is there an official definition?

Megging

Oh weird - I was on the caves thread when writing this and the browser crashed when I tried to post it. It completely vanished - I rewrote it already, think it had poofed away forever!

Cindy Williams

This episode was truly incredible. As somebody who has been diagnosed as Autistic as an adult, and is actively working through a diagnosis for some autoimmune illness (likely fibromyalgia), hearing an expert just say “if you feel disabled, you’re allowed to claim that space” was just… a lot. I’ve had a very very hard time allowing myself to enter those communities and get rid of my imposter syndrome. Thank you for bringing this to my earholes. So grateful.